Our Story

Turner Syndrome (TS), a chromosomal disorder which impacts only females, shortens their height, causes other life-long medical problems and some degree of Nonverbal Learning Disabilities (NLD).  Nonverbal Learning Disabilities can be found in both genders, but the symptoms might be subtle and may often be unrecognized or misdiagnosed.  (Nonverbal Learning Disabilities can also affect people with different medical conditions, including Asperger's and others.)  NLD can lead to problems with motor skills, visual/spatial/organizational/time misperceptions and/or social difficulties.  Little is known about these issues among the general public, parents, teachers and even most doctors. 

 

The Turner Town Project was originally a Girl Scout Gold Award endeavor that has expanded and continues today to inform communities about Turner Syndrome and Nonverbal Learning Disabilities.  This copyrighted program was the sole creation of the director with her family collaboration after personal experience with these health matters touched their lives.  Since knowledge is power, the Director made it her mission to educate as many people as possible.

   

This ongoing comprehensive awareness campaign consists of a self-teaching traveling exhibit, Turner Town, educational posters and workshop materials.  These include children’s activities, a teen newspaper, pre-school “tot lot,” playscapes, comparison growth charts/measuring stands, “fast-fact” flip books, “real world” photo collages, a resource guide book, portable reference/lending library and education stations.  The centerpiece of the campaign is Turner Town, a collection of miniature dollhouses with individual storyboards in front of each building.  These storyboards depict the everyday challenges of a girl with TS and NLD, Joy, from birth through her young adult years.  Each scene illustrates a specific characteristic or concern of TS or NLD.  It also offers possible solutions in overcoming both medical and academic obstacles.  Turner Town strives to eliminate any discrimination towards people who may be dealing with health and/or learning problems.  It is designed to be appealing to all age groups.  This one-of-a-kind exhibit is meant to be very engaging, entertaining, eye-opening AND educational.  Town guests have been captivated by the themes, decorations and details of the display and can probably relate to scenarios in their own homes or neighborhoods.  The Project showcases one's ABILITIES, despite disabilities!  The unforgettable message of The Turner Town Project promotes a genuine understanding of this very special population.  In turn, perhaps the Town visitors will "spread the word" to others as well.

 

In addition, Turner Town's Director has conducted seminars and given speaking presentations to numerous school/scout gatherings, graduate students, civic groups and university disability clubs. She has counseled individuals and families in-person, on the telephone or by email.  The Director has also distributed countless information cards, brochures and articles to school staff, medical personnel, college offices and other interested parties over the years.

 

The Turner Town Project began as a vision from a girl and her family and has grown through the generosity of donors, volunteers, supporters, local professionals and librarians that have hosted Turner Town.  Newspaper reporters have publicized this campaign and the Director has been interviewed by television and radio hosts.  Stories about this Project has been found on several internet sites, including international webpages.  New venue suggestions for Turner Town are always welcomed for consideration.